Congenital Heart Disease: Transitioning From Pediatric to Adult Care

There have been significant advances in precision of diagnosis, imaging, arrhythmia prevention and treatment, minimally invasive therapies such as transcatheter valves and surgical innovations. Each advance translates to more children surviving to adulthood and improvements in quality of life for adults with congenital heart disease.

 

Many children who are diagnosed with congenital heart disease begin receiving care at an early age. In many cases, strong relationships form between care providers and the entire family. We recognize that the transition from adolescent specialists to adult specialists can be complicated, and offer a dedicated nurse to ensure a smooth transition from child-focused care into adulthood.

 

Our goal is to partner with patients who will require lifelong follow-up care. As young adults, patients might face questions such as "Will I pass this on to my child?", or "How will I continue to monitor my care away from home?" We want to continue to be a resource and partner with patients for lifelong care.

 

As patients continue to move through different phases of life, the UW Health Adult Congenital Heart Disease Program will continue to be a resource to provide patients with ongoing information about their condition. For patients contemplating starting a family, we offer care to patient who may be pregnant, to manage symptoms throughout their pregnancy. We focus on patient education so that patients are aware of all of their options and are empowered to advocate for quality lifelong care.