Reflex Sympathetic Dystrophy Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Reflex Sympathetic Dystrophy Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms Back to top
- Causalgia Syndrome (Major)
- Reflex Neurovascular Dystrophy
- Sudeck's Atrophy
- Complex Regional Pain Syndrome
Disorder Subdivisions Back to top
General Discussion Back to top
Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a rare disorder of the sympathetic nervous system that is characterized by chronic, severe pain. The sympathetic nervous system is that part of the autonomic nervous system that regulates involuntary functions of the body such as increasing heart rate, constricting blood vessels, and increasing blood pressure. Excessive or abnormal responses of portions of the sympathetic nervous system are thought to be responsible for the pain associated with reflex sympathetic dystrophy syndrome.
The symptoms of reflex sympathetic dystrophy syndrome typically begin with burning pain, especially in an arm, finger(s), palm of the hand(s), and/or shoulder(s). In some individuals, RSDS may occur in one or both legs or it may be localized to one knee or hip. Frequently, RSDS may be misdiagnosed as a painful nerve injury. The skin over the affected area(s) may become swollen (edema) and inflamed. Affected skin may be extremely sensitive to touch and to hot or cold temperatures (cutaneous hypersensitivity). The affected limb(s) may perspire excessively and be warm to the touch (vasomotor instability). The exact cause of RSDS is not fully understood, although it may be associated with injury to the nerves, trauma, surgery, atherosclerotic cardiovascular disease, infection, or radiation therapy.
Resources Back to top
Reflex Sympathetic Dystrophy Syndrome Association of America
PO Box 502
Milford, CT 06460
American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
P.O. Box 7669
Atlanta, GA 30357-0669
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
American Pain Society
4700 West Lake Avenue
Glenview, IL 60025
c/o Dannemiller, Inc.
5711 Northwest Parkway
San Antonio, TX 78246
P.O. Box 875
Harrison, ME 04040-0875
International Association for the Study of Pain
111 Queen Anne Ave N, Suite 501
Seattle, WA 98109-4955
Vasculitis of the Central Nervous System
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
P.A.R.C. Promoting Awareness of RSD/CRPS in Canada
PO Box 21026
Ontario, L2M 7X2
Irish Chronic Pain Association
Coleraine House, Coleraine St.
Tel: +353 1 804 7567
Fax: +353 1 8047567
American Pain Foundation
201 North Charles Street
Baltimore, MD 21201-4111
6001 Park of Commerce Blvd. Suite 300
Boca Raton, FL 33487
For a Complete Report Back to top
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 8/17/2007
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