Sporadic Inclusion Body Myositis
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Sporadic Inclusion Body Myositis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Sporadic inclusion body myositis (sIBM) is an acquired progressive muscle disorder that becomes apparent during adulthood. The symptoms and progression of sIBM vary from one person to another. In most cases, sIBM is characterized by progressive weakness and degeneration (atrophy) of the muscles especially those of the arms and the legs. sIBM can progress to cause severe disability. The exact cause of the disorder is unknown and the muscle tissue of affected individuals shows both inflammatory and degenerative changes. sIBM is a complex disorder and, most likely, multiple factors including genetic, immunological and environmental ones in combination all play a role in its development.
American Autoimmune & Related Diseases
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Autoimmune Information Network, Inc.
- PO Box 4121
- Brick, NJ 8723
- Fax: (732)543-7285
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Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
Muscular Dystrophy Association
- 3300 East Sunrise Drive
- Tucson, AZ 85718-3208
- Tel: (520)529-2000
- Fax: (520)529-5300
- Tel: (800)572-1717
- Email: email@example.com
- Website: http://www.mda.org/
- 1737 King Street
- Suite 600
- Alexandria, VA 22314
- Tel: (703)299-4850
- Fax: (703)535-6752
- Tel: (800)821-7356
- Email: firstname.lastname@example.org
- Website: http://www.myositis.org
Myositis Support Group at the Hospital for Special Surgery
- 2nd Floor Conference Center, Room A
- 535 East 70th Street
- New York, NY 10021
- Tel: (212)774-7623
- Fax: (212)774-2333
- Email: email@example.com
- Website: http://www.hss.edu/MyositisGroup.asp
NIH/National Institute of Neurological Disorders and Stroke
- P.O. Box 5801
- Bethesda, MD 20824
- Tel: (301)496-5751
- Fax: (301)402-2186
- Tel: (800)352-9424
- Website: http://www.ninds.nih.gov/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 12/15/1969
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