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Innovative pediatric lung transplant care
When a child age 12 or older needs a lung transplant, our experts are here for you. Our lung transplant team uses more than 30 years of experience to return your child to health. We treat the most complex cases. And as a result, these young adults can return to an active life.
We provide lung transplants for acute, congenital and chronic end-stage lung conditions. You’ll find our wait times are among the shortest in the nation. And our pediatric lung transplant program is approved by the United Network for Organ Sharing (UNOS).
We use advanced treatment options like extracorporeal membrane oxygenation (ECMO). For children who need it, ECMO provides specialized life support that keeps them comfortable as they wait for a transplant. ECMO pumps add oxygen to the blood outside the body when the heart and lungs cannot do the work on their own. We are Wisconsin’s only gold-level certified ECMO Center of Excellence
Why choose UW Health?
Our median wait time for a lung transplant is less than 30 days. That’s shorter than other regional and national programs and means your child can start being a kid sooner. The Scientific Registry of Transplant Recipients (SRTR) provides data about each transplant center’s volume and outcomes.
UW Health experts successfully treat the most complex pediatric lung cases. We are a Center of Excellence for most insurance networks and Wisconsin’s only gold-level certified ECMO Center of Excellence. In addition, U.S. News & World Report ranks our American Family Children’s Hospital as the No. 1 hospital in Wisconsin.
Caring for kids who need more than one organ transplant is a complex process. Our experienced team works with our experts in heart, kidney, liver, lung and pancreas transplantation. Together we manage the care your child needs when they need more than one new organ.
UW Health is an academic medical center. We are dedicated to research, and our team has a long list of contributions that have changed the lives of transplant patients. Our research on immunosuppression is greatly improving the way kids live with new organs. Experts in pediatrics, cardiology and transplantation make up the UW Health team focused on creating better futures and easier experiences for transplant patients.
As your child grows up, our respected transplant program teaches them how to manage their own care.
It’s normal to worry when your child doesn’t feel well after a transplant. However, our entire team of pediatric experts is here for your family, whether your child gets a common infection or experiences complications.
What to expect
The lung transplant process for adolescents
We work to make your young adult’s lung transplant journey as easy as possible.
Knowing your child needs a lung transplant is scary. We understand. Our goal is to improve your child’s quality of life and give them the best opportunity to live longer.
We guide your family through every step of the lung transplant process. Your transplant nurse coordinator organizes and oversees all aspects of your child’s care – from initial referral to life after transplant. We become your child’s lifelong partner for a healthy and active life.
Here’s what you can expect when your child needs a lung transplant.
You and our lung transplant team meet for a complete evaluation. During this time, your child receives:
A mental and emotional health assessment if age appropriate
A physical exam
Right heart catheterization
Consultations with other lung transplant team members
Pulmonary function tests
Together we’ll talk about available support and any financial needs you may have. We encourage you to ask questions so we can address your concerns.
Our entire transplant team discusses everything related to your child’s health to decide if a lung transplant is the best option.
When your child is approved for a lung transplant, we place them on the list for one or two lungs. When a donor lung or lungs become available, they go to the young adult who is the best possible match, as identified by the United Network for Sharing Organs (UNOS).
UNOS determines when your child will receive donor organs. It may be days, weeks or months. In the meantime, we help you and your family stay prepared for lung transplant surgery. Depending on your child’s health, you wait for the lung transplant at home or in the hospital.
During your wait time, we provide ongoing care for your child. Regular doctor appointments help us monitor your child’s health. And, if needed, we provide ECMO and other treatments to keep their lungs functioning and help them feel better. We focus on maintaining good nutrition, muscle strength and mental health while waiting for transplant in order to improve your child’s post-transplant outcome.
In addition, our child life specialists help your child understand the surgery and know what to expect when they wake up after surgery.
When your child is matched with donor lungs, we call you right away to come to the hospital or notify you if your child is an inpatient. Once you arrive, we admit your child to the cardiac intensive care unit (CICU). There, your child will receive several pre-transplant tests, including:
Chest X-ray or other imaging tests
Your care team will place an IV in your child to administer medicines to prevent infection and to help your child’s body accept the donor organs.
When the donor lungs are ready for transplantation, we take your child to the operating room. The transplantation procedure includes:
Giving your child anesthesia, medicine to get them to sleep
Placing your child on a heart-lung machine, which maintains blood flow and breathing for your child during surgery
Removing your child’s failing lungs
Connecting the donor lungs to your child’s respiratory system
After surgery, your child spends several days in the ICU recovering. During this time, your child will have:
A breathing tube to help them breathe for the first one or two days after surgery
A chest tube to help remove fluid for a few days to a week after surgery
Cardiac monitors to track their vital signs
IV medicines to prevent infection and rejection of the donor lungs
Physical and occupational therapy a day or two after surgery
As your child gets stronger, they continue their recovery in a private room. You can stay in the room with your child. Your child will likely be in the hospital for two to three weeks before going home.
Our child life specialists provide activities to keep your child engaged while staying in their room.
As part of follow-up care, your care team teaches you about:
Precautions to keep your child healthy
Routines to follow once you return home
Tracking your child’s care
What to watch for, such as signs of infection and side effects
Your child’s medicines and how and when to administer them
Your child continues their recovery at home. Together, you will have regular visits with their pediatrician and the transplant team. As follow-up care, you focus on helping your child get the right:
Your child will also need ongoing tests. A bronchoscopy lets the doctor see the inside of the lungs to check for infection. A biopsy takes a tissue sample to test for infection and signs of rejection. These tests occur five or six times the first year after a lung transplant.
Meet our team
Expertise and experience
Your child’s lung transplant team includes knowledgeable transplant pulmonologists, respiratory therapists, transplant pharmacists, transplant surgeons and certified transplant nurse coordinators. We also match you with a nurse coordinator who helps guide your family as you manage your child’s health. During your time with us, you also work with pediatric transplant social workers, pharmacists, financial counselors and other transplant experts to get the support and education you and your child need.
Patient and support services for your and your family
We connect you with information and resources to help manage your child’s lung transplant experience.
Our pediatric experts have cared for children for more than 100 years. We focus on each child’s unique needs and offer social and emotional support to help you and your child face even the most complex condition. Our long history includes the creation of medical advances that save lives around the world. Together, we help your child recover and get them back to the activities they love.
Advanced access to care
We provide pediatric lung transplant services at American Family Children’s Hospital in Madison, Wisconsin. We use telemedicine and virtual appointments to increase safety and build connections between you and your care team.
Learn how we’re improving transplantation, read inspiring stories and discover ways you can save more lives by promoting organ donation.