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Protocol No. UW19038

Principal Investigator Litzelman, Kristin

Phase Pilot/Feasibility

Age Group Adult

Scope Local

Sponsor Type Institutional

Title Symptom Cluster Experience of Cancer Patient-Caregiver Dyads

Objective The purpose of this research study is to learn about patients; and caregivers; ability to report their symptoms weekly over a period of 8 weeks, and to describe patients; and caregivers; symptom experiences. People with cancer often have several symptoms that co-occur in groups. Caregivers may also have symptoms as a result of stress or their own health conditions. We hope that collecting this information from patient caregiver pairs will help us better understand the groups of symptoms that the pairs have, how the symptoms change over time, and if patients’ and caregivers’ symptoms are related.

Treatment NA

Description Symptom Cluster Experience of Cancer Patient‐Caregiver Dyads

Key Eligibility
Patients:
  • Adult patients aged 18 years or older.
  • Diagnosis of cancer, including metastatic disease.
  • Receiving active treatment with chemotherapy, radiation therapy, and/or hormonal therapy
  • Report experiencing at least 3 symptoms in the past 3 weeks,excluding those that pre-dated the cancer
  • Access to a computer, tablet, or smartphone with internet connection
  • Able to read and write in English
    EXCLUSION for Patient:
  • Cognitive or physical impairment that, in the opinion of a treating staff member, would preclude completion of study procedures, including use of a touch-pad or laptop computer
    Inclusion for Caregiver
  • Adults aged 18 years or older
  • Identified by the patient as a caregiver
  • Access to a computer, tablet, or smartphone with internet connection
  • Able to read and write in English
    Exclusion for Caregiver:
  • Cognitive or physical impairment that would preclude completion of study procedures, including use of a touch-pad or laptop computer

  • Applicable Disease Sites Anal; Any Site; Bladder; Brain/Central Nervous System; Breast; Cervix; Colon and Rectum; Endocrine cancers; Esophagus; Gastrointestinal cancers, other; Genitourinary cancers, other; Head and Neck; Hematologic cancers, other; Ill-Defined Sites; Kidney; Leukemia; Liver; Lung; Lymphoma; Melanoma/Skin cancer; Multiple Myeloma; Ovary; Pancreas; Prostate; Sarcoma; Stomach; Thyroid; Unknown Sites; Uterus

    Status Open

    Participating Institutions UW Hospital and Clinics