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Protocol No. UW17147

Principal Investigator Shumway, Cassie

Phase Pilot/Feasibility

Age Group Adult

Scope Local

Sponsor Type Institutional

Title Pre-Visit Planning in Palliative Care

Objective The purpose of this research study is to learn about preparing patients and their families for first palliative care clinic visit, This research is being done because people often misunderstand what palliative care means, or come to the clinic worried and not knowing what to expect. Some people may be anxious that they avoid seeing the palliative care provider. This study will evaluate effects of providing information to patients prior to their clinic visit. You should have already received a pre-visit phone call, either a short reminder of the appointment, or a longer conversation about your needs and what to expect at your palliative care clinic visit. We want to evaluate how the information provided in that phone call affected your visit today.

Key Eligibility
  • Adults 18 years of age or older
  • Self-referred or referred by a clinician for initial consultation with the UW Health Palliative Care Clinic.
    Meeting UW Health Palliative Care Clinic referral criteria, which include:
  • diagnosis of advanced cancer, congestive heart failure, chronic obstructive pulmonary disease, neurodegenerative disease, liver or renal disease, and 1 of the following:
  • complex symptoms
  • high levels of spiritual, emotional and social stress
  • limited treatment options or poor performance status
  • hesitance to engage in advance care planning
  • help sorting out difficult decision making
  • patient/family requesting a palliative care consult.
  • Surrogate Caregivers: Caregivers will be included as a surrogate if, in the opinion of the treating provider, the patient is unable to reliably answer questions. Eligible caregivers include:
  • Adults 18 years of age or older
  • Accompanying the patient to the initial palliative care consult
  • dentified by the patient or self-identified as a “caregiver” or “support person”
    Patients excluded from participating will be:
  • Non-English speaking patients. We will exclude non-English speakers due to the unpredictable impacts of the translation/interpreter dynamic. This would include deaf patients.
  • Patients who received an inpatient palliative care consult at UW Health prior to the outpatient referral.
  • Patients who previously received formal palliative care consultation or services at another health care agency.
  • Patients who are unreachable by phone or in-person contact, including those reachable by voice mail only.
    Caregivers excluded from serving as a surrogate will be:
  • Non-English speaking or deaf caregivers.
  • Caregivers who have previously been the (patient) recipient of palliative care services.
  • Caregivers who are unreachable by phone or in-person contact, including those reachable by voice mail only.

  • Applicable Disease Sites Anal; Any Site; Bladder; Brain/Central Nervous System; Breast; Cervix; Colon and Rectum; Endocrine cancers; Esophagus; Gastrointestinal cancers, other; Genitourinary cancers, other; Head and Neck; Hematologic cancers, other; Ill-Defined Sites; Kidney; Leukemia; Liver; Lung; Lymphoma; Melanoma/Skin cancer; Multiple Myeloma; Ovary; Pancreas; Prostate; Sarcoma; Stomach; Thyroid; Unknown Sites; Uterus

    Status Open

    Participating Institutions UW Hospital and Clinics