Asking Someone to be a Living Liver Donor: Using Social Media

Social media is a fast and easy way to tell people that someone needs a living donor and lets your friends share that fact with other people outside your immediate social circle.

 

Create a Facebook Page - Dos and Don'ts

 

If you don't have an existing page, or wish to keep that private, start by creating a new Facebook page (or ask your living donor champion to do this). Following are five tips for what to keep in mind when you're creating the post. Recent research has proven that the first three are important things to do when using Facebook to find a living donor:

  1. Share the patient’s personal information, including age, location, photograph and the cause of their liver disease. Help people understand how much they want to be healthy and that a living donor will save their life. Keep it short.
  2. Include the way they can take the next step by including this URL: uwhealth.org/CanIBeADonor
  3. To expand how many people will see the posts, ask others to share it on their own page, and to "Like" your posts.
  4. Do not include your personal contact information or the names/contact information of the transplant team.
  5. Avoid giving any impression that you are asking for money and/or share any fundraising information.

Sample Facebook Post

 

Below is a sample post. You would adapt the language if being posted by a living donor champion.

 

Friends, I am reaching out to you all with the hope that you can help me share this news far and wide. I am ____ years old, and live in [city, state]. I just learned that I need a liver transplant, and that a living donor is my best chance for survival. As you may know, I have [disease and details about how it has changed your life.] I want to be healthy again! I want to enjoy [details here] I look forward to the day that I'm not tired, unwell and can live my life to the fullest. A portion of liver from a living liver donor can save my life. If you would consider being my living donor, please complete the form at uwhealth.org/CanIBeADonor. Donation costs are covered by my insurance, and the information you share will be kept confidential with the transplant team. Please Like and Share this post on your own page, then many more people can hear my story. Thank you my friends!