Adult congenital heart disease: Your partner for lifelong care

Doctors often identify congenital heart disease early in life. But some people don’t learn of their condition until they’re adults. At UW Health, we partner with you to provide lifelong care, no matter when you get your diagnosis. We give special attention to children transitioning from pediatric to adult heart specialists. We’re also a trusted resource to people as they enter different life stages, such as pregnancy.

Our adult congenital heart disease program is nationally accredited — only a select group of centers in the U.S. have achieved this status.

Specific conditions we treat include: 

• Aortic aneurysm

• Aortic arch anomalies

• Aortopulmonary collateral

• Aortic valve disease

• Aortic valve insufficiency

• Atrioventricular canal defect

• Arrhythmias

• Bicuspid aortic valve 

• Coarctation of the aorta

• Crisscross heart

• Cyanotic congenital heart defect

• DiGeorge syndrome

• Double-outlet ventricle

• Double-inlet ventricle

• Heart failure (cardiomyopathy)

• Ebstein anomaly

• Eisenmenger syndrome

• Fontan anatomy

• Heterotaxy syndrome

• Holt-Oram syndrome

• Hypoplastic left or right heart syndrome

• Interrupted aortic arch

• Isomerism

• Kawasaki disease

• Loeys-Dietz syndrome

• Marfan syndrome

• Mitral valve prolapse

• Mitral atresia

• Noonan syndrome

• Parachute mitral valve

• Partial or total anomalous pulmonary venous return

• Patent ductus arteriosus

• Pulmonary valve insufficiency

• Pulmonary valve stenosis

• Peripheral pulmonary stenosis

• Shone complex

• Single ventricle

• Subvalvar aortic stenosis

• Supravalvar aortic stenosis

• Tetralogy of Fallot 

• Truncus arteriosus

• Transposition of the great arteries (d-TGA, cc-TGA, l-TGA)

• Tricuspid atresia

• Turner syndrome

• Ventricular inversion

• Unicuspid aortic valve

• Vascular Ehlers-Danlos syndrome

• Ventricular septal defect 

• Williams syndrome

• Wolff-Parkinson White syndrome

We tailor treatment to your needs. Some conditions cause few or no issues at first. We monitor them carefully because they might get worse over time. Other conditions can be life-threatening right away. Even problems that were addressed when you were a child could need more attention later in life.

Congenital heart disease can have a big impact on your life. We work to address all the challenges it can bring. With helpful clinics and services, we provide the most advanced monitoring and treatments. We also make sure you have the right support. Our goal is to make your condition easier to manage.

Where you get your care matters. You want expertise, doctors who care and the best results. You’ll find all of that at UW Health. Our specialists are known for their experience in all aspects of congenital heart disease care. Some of our surgeons operate on both children and adults, which is rare. We work to meet your needs so that you can live fully and comfortably.

With clinic locations and services in Madison, Wausau and Green Bay, help is nearby.