You will meet with each member of the care team at least once annually. More often if you have concerns or questions. This includes the doctor or nurse practitioner, pharmacist, respiratory therapist, dietician, social worker, mental health coordinator and physical therapist.
We recommend most patients be seen quarterly in the clinic (every 3 months). More frequent visits might be suggested depending on your symptoms, particularly if you are having symptom flare or if you have been recently hospitalized. We can often see you on short notice if necessary.
Call (608) 263-7203 to make an appointment.
If this is your first visit, please bring a list of your medications along with instructions or bring the medications in their original bottles.
Request a copy of your medical records be sent to us prior to your first visit.
Preparing For a Clinic Visit
Please bring a list of questions and a list of refill medication needs.
What to Expect at a Typical Clinic Visit
Receptionist: will greet you.
Most patients will be scheduled to have a lung function test (PFT) upon arrival at the clinic.
A medical assistant (MA) will take your blood pressure, temperature, respiratory rate and pulse.
The length of each clinic visit varies between 30 to 120 minutes.
Each visit will be with several members of your CF team.
Physicians and Advanced Practice Providers: will assess your current state of health and well-being, perform a physical exam and partner with you to develop a plan of care to help you thrive in your daily life.
Our pharmacist will help you sort through your medicines; current prescriptions and dosage, risk for interactions and whether any monitoring labs are recommended.
Our dietitian can help you maximize your nutrition. She will review what you’re eating and when, including input on any enzyme dosing and will offer feedback. She also reviews vitamins and feeding supplements.
Our social worker supports your work-life balance and health care access. She talks with you about family, home life, employment, activities, finances and helps connect you with resources or supportive services.
Respiratory therapists help you learn and practice airway clearance techniques. They are excellent resources with information about use and care of your nebulizers and vest.
Physical therapists help you safely incorporate physical activity into your daily life to improve strength, endurance and quality of life.
Our Mental Health Coordinator supports your quality of life, coping and mood. She assesses how you’re feeling, helps identify goals, and helps you connect with treatment for depression and anxiety.
University Hospital is a teaching hospital, so students or residents may be present during your clinic visit.
If you have questions or concerns, please let any of your team know.
You will be provided an after-visit summary at check-out. Please take this home.
We request that you schedule your next clinic visit when you check out.
What to Expect After a Clinic Visit
It may be recommended that you have additional tests such as X-rays or blood draws.
We work hard to get back to you with these results in a timely manner.
If you have questions or concerns, please (608) 263-7203, option 4 to speak with one of the CF nurses. They are available to take your call Monday-Friday 8am-4:30pm.
After business hours, call the hospital and ask to speak with the on-call pulmonary fellow at (608) 262-2122.