Connecting to Community

Patient and Family Advisory Council

 

The Patient and Family Advisory Council is a partnership between cystic fibrosis patients and clinic staff to strengthen patient voice at the CF program. It provides the opportunity for people with CF to take an active role in shaping the UW CF program.

 

Each participant’s voice is valuable, and every perspective should be heard. By joining this group, you can share your unique experiences, learn about things happening at the center, and influence initiatives.

 

The Patient and Family Advisory Council is composed of 8-10 adults with cystic fibrosis and clinicians who agree to serve a 1-year term. The group holds bi-monthly teleconferences.

 

Some areas influenced by the Patient and Family Advisory Council:

  • Ways for patients to learn about new medications
  • Clinic flow processes
  • How to promote smooth transitions to the adult program

For more information, please contact mental health coordinator Rebecca Hays at rhays@uwhealth.org or (608) 263-8214.

 

Family Education Day

 

We host an annual day-long event for CF families. Topics have included Patient-Provider Partnerships, History of CF Research, Medication Development and inspirational talks by adults thriving with CF. Check back for 2019 Family Education dates and topics.

 

Great Strides

 

Until It's Done: Take Great Strides to help us cure Cystic Fibrosis. Stay tuned for photos from the 2019 walk.

 

Get Involved, Give Back

 

Your generosity will help support the Department of Medicine in its research and teaching initiatives, looking for new and better ways to treat disease and promote wellness. Your gift will also help train the next generation of physicians to provide complete and compassionate care.

 

Gifts to programs within the Department of Medicine at the University of Wisconsin may be made through our philanthropic entity, the University of Wisconsin Foundation. Your gift to the Department of Medicine at the University of Wisconsin is fully tax-deductible to the extent allowed by law.

 

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