American Family Children's Hospital
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Past Projects

Below please find a selected list of the Cancer Prevention and Outcomes Data (C-POD) users, project descriptions and accomplishments.

  1. Lee Wilke, MD, Greater Plains Collaborative Breast Cancer Study: This project is part of a major new initiative funded by the Patient-Centered Outcomes Research Institute (PCORI). The Greater Plains Collaborative is comprised of leading medical centers in 7 states and has selected breast cancer as a topic to demonstrate that the network is capable of collaboration and data sharing across 9 sites that serve adult patients. The University of Wisconsin Carbone Cancer Center is one of the sites.

    C-POD provided project management, incentive management, and mailing administration services for this project. Specifically, C-POD worked closely with the lead site, University of Iowa, in mailing surveys to 250 breast cancer patients treated at UW Hospital along with consent forms requesting access to medical record information and consent for future use of medical record information.

  2. Noelle LoConte, MD, HPV Environmental Scan: This National Cancer Institute (NCI) funded project aimed to enhance collaborations to develop research and interventions to increase HPV vaccination uptake in primary care settings in Wisconsin. Working closely with the Wisconsin Comprehensive Cancer Control Program, C-POD staff helped create and collect data via a web survey which invited 270 respondents. The C-POD also requested data from the Wisconsin Immunization Registry, and evaluated an education intervention conducted among UW Health clinics. Furthermore, C-POD took part in preparing the final report submitted to NCI.

    Presentation: Mroz S, Zhang X, Williams M, Conlon AJ. Wisconsin HPV Environmental Scan. Poster presentation at the 144th American Public Health Association Annual Meeting, Chicago, IL, October 29-November 2, 2015

  3. Amye Tavaarwerk, MD, Work Limitations Study among Cancer Survivors: This project used qualitative methods to study the impact of cancer treatments on survivor’s ability to work. The C-POD assisted Dr. Tavaarwerk to develop interview questionnaires, and was responsible for conducting phone interviews with 11 cancer survivors and performing framework analysis using Nvivo software.

  4. Amy Trentham-Dietz, PhD, Wisconsin in situ Cohort (WISC): This project is an on-going cohort study following approximately 2,000 Wisconsin women diagnosed with carcinoma in situ of the breast in 1997-2006. For this project, C-POD was involved with project management, incentive management, mailing administration, and phone follow-up services. C-POD mailed 1,500 surveys and used several approaches to encourage participation.

    Publications:
    • Hart V, Sprague BL, Lakoski SG, Hampton JM, Newcomb PA, Gangnon RE, Trentham-Dietz A. Trends in health-related quality of life after a diagnosis of ductal carcinoma in situ. J Clin Oncol. 2016 Apr 20;34(12):1323-9.
    • Khadanga S, Lakoski SG, Hart V, Sprague BL, Ba Y, Hampton JM, Higgins ST, Ades PA, Newcomb PA, Trentham-Dietz A. Partnership status and socioeconomic factors in relation to health behavior changes after a diagnosis of ductal carcinoma in situ. Cancer Epidemiol Biomarkers Prev. 2016 Jan;25(1):76-82.
    • McLaughlin VH, Trentham-Dietz A, Hampton JM, Newcomb PA, Sprague BL. Lifestyle factors and the risk of a second breast cancer after ductal carcinoma in situ. Cancer Epidemiol Biomarkers Prev. 2014 Mar;23(3):450-60.
    • Sprague BL, McLaughlin V, Hampton JM, Newcomb PA, Trentham-Dietz A. Disease-free survival by treatment after a DCIS diagnosis in a population-based cohort study. Breast Cancer Res Treat. 2013 Aug;141(1):145-54.

  5. Polly Newcomb, PhD, Environmental Exposures and Breast Density Study: This study examined the connection between breast density, as evaluated by a mammogram, and the levels of the heavy metal cadmium measured in the urine. The C-POD administered a national survey of 725 women who volunteered to be a part of Avon’s Army of Women. Data collection included an online survey, medical records collection, and collection of a urine sample (self-collected in women’s homes) using kits delivered through express mail. The C-POD also facilitated collection and abstraction of mammographic reports from providers across the United States.

    Publication: Adams SV, Hampton JM, Trentham-Dietz A, Gangnon RE, Shafer MM, Newcomb PA. Urinary cadmium and mammographic breast density. Epidemiology (in press).

  6. Ana Martinez-Donate, PhD, Rural Oncology Literacy Enhancement Study (ROLES): The ROLES project assessed health literacy and patient navigation needs among rural cancer patients using a mixed methods (qualitative and quantitative) approach. The C-POD was involved in multiple aspects of this project including project management, programming, mailing administration, data entry, and data management.

    Publications:
    • Halverson J, Martinez-Donate AP, Trentham-Dietz A, Walsh MC, Strickland JS, Palta M, et al. Health literacy and urbanicity among cancer patients. J Rural Health. 2013;29(4):392–402.
    • Martinez-Donate AP, Halverson J, Simon N-J, Strickland JS, Trentham-Dietz A, Smith PD, et al. Identifying health literacy and health system navigation needs among rural cancer patients: findings from the Rural Oncology Literacy Enhancement Study (ROLES). J Cancer Educ. 2013 Sep;28(3):573–81.