Comprehensive Pediatric Neurocutaneous Clinic

UW Health's Comprehensive Pediatric Neurocutaneous Clinic provides a multidisciplinary service for the diagnosis, treatment and long-term care of children and young adults with a neurocutaneous syndrome. Ours is the only neurocutaneous clinic in Wisconsin

What is neurocutaneous syndrome?

Neurocutaneous syndrome is a broad term used for a group of genetic disorders that cause tumors or lesions in various parts of the body, including the brain, spine, nerves, bones, blood vessels and skin. These diseases are life-long conditions and require a continuum of care from many specialties.

The most common neurocutaneous disorders include:

• Neurofibromatosis Type 1 and Type 2
• Tuberous Sclerosis (Complex)
• von Hippel-Lindau disease
• Sturge-Weber syndrome
• Ataxia-telangiectasia

Services

The goal of the Comprehensive Pediatric Neurocutaneous Clinic is to provide seamless individualized treatment and education concerning your child's health and treatment plan. This will be accomplished through:

• Detailed history and physical examination, diagnosis and counseling
• Comprehensive education regarding the diagnosis, testing and all aspects of treatment
• Ordering of laboratory and radiological tests
• Providing support, information and resources to individuals and families about the disease
• Assisting with school and insurance issues