American Family Children's Hospital

Comprehensive Pediatric Neurocutaneous Disorders Clinic

American Family Children's Hospital

1675 Highland Ave.
Madison, WI 53792
(608) 263-6420 | (800) 323-8942

View Map Driving Directions

Do you have access to UW Health MyChart?

MyChart is a secure, interactive patient portal where you can view portions of your medical record such as lab results, send messages, and more. Request a MyChart account now

What is neurocutaneous syndrome?

Neurocutaneous syndrome is a broad term used for a group of genetic disorders that cause tumors or lesions in various parts of the body, including the brain, spine, nerves, bones, blood vessels and skin. These diseases are life-long conditions and require a continuum of care from many specialties.

The most common neurocutaneous disorders include:


The goal of the Comprehensive Pediatric Neurocutaneous Clinic is to provide seamless individualized treatment and education concerning your child's health and treatment plan. This will be accomplished through:

  • Detailed history and physical examination, diagnosis and counseling
  • Comprehensive education regarding the diagnosis, testing and all aspects of treatment
  • Ordering of laboratory and radiological tests
  • Providing support, information and resources to individuals and families about the disease
  • Assisting with school and insurance issues