Alveolar Capillary Dysplasia

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Alveolar Capillary Dysplasia is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Alveolar capillary dysplasia (ACD) is a rare, likely congenital, disorder of the lungs (pulmonary system) and especially of the blood system serving the lungs. It is a disorder of the newborn. The normal diffusion process of oxygen from the air sacs to the blood in the lungs and, thence, to the heart, fails to develop properly. The disorder is sometimes called misalignment of the pulmonary veins. Rather than misaligned, the pulmonary vein is malpositioned in a site somewhat different from its normal position.

Infants with the disorder present with the signs of lack of oxygen (hypoxemia) and severely increased pulmonary hypertension.

Since treatment is seldom, if ever, effective, life expectancy of the infant is very, very, short.

Supporting Organizations

Alveolar Capillary Dysplasia Association

c/o Steve Hanson, President
5902 Marcie Court
Garland, TX 75044-4958
USA
Email: secretary@acdassociation.org
Website: http://acdassociation.org/

American Lung Association

55 W. Wacker Drive
Suite 1150
Chicago, IL 60601
USA
Tel: 1-800-548-8252
Email: info@lung.org
Website: http://www.lungusa.org

Fetal Hope Foundation

9786 South Holland Street
Littleton, CO 80127
USA
Tel: (303)932-0553
Tel: (877)789-4673
Email: info@fetalhealthfoundation.org
Website: http://www.fetalhope.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

Infants Remembered In Silence, Inc. (IRIS)

218 Third Ave. NW
Faribault, MN 55021
Tel: (507)334-4748
Fax: (507)334-4748
Email: support@irisremembers.com
Website: http://www.irisRemembers.com

Share Pregnancy & Infant Loss Support, Inc.

402 Jackson Street
Saint Charles, MO 63301
Tel: (636)947-6164
Fax: (636)947-7486
Tel: (800)821-6819
Email: info@nationalshare.org
Website: http://www.nationalshare.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  9/15/2016
Copyright  2003 National Organization for Rare Disorders, Inc.