National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Cervical Dystonia is not the name you expected.
Cervical dystonia, also known as spasmodic torticollis, is a rare neurological disorder that originates in the brain. It is the most common form of focal dystonia in an office setting. Cervical dystonia is characterized by involuntary muscle contractions in the neck that cause abnormal movements and postures of the neck and head. In some cases, these abnormal contractions may be sustained or continuous; in others, they may be present as spasms that can resemble tremor. The severity of cervical dystonia can vary, but the disorder can cause significant pain and discomfort as well as difficulty due to the abnormal postures. It can affect quality of life and activities of daily living including employment. Cervical dystonia typically begins in middle age, and rarely begins in adolescence and young adulthood. The cause of cervical dystonia is unknown, although a genetic susceptibility is thought to underlie some cases. If cervical dystonia begins in infancy or early childhood, secondary causes should be investigated.
American Dystonia Society
- 17 Suffolk Lane
- Suite 1
- Princeton Junction, NJ 08550
- Tel: 310-237-5478
- Fax: 609-275-5663
- Email: email@example.com
- Website: http://www.dystonia.us
- Square de Meeus 37 - 4th Floor
- Brussels, 1000
- Tel: +46 739 98 49 61
- Email: firstname.lastname@example.org
- Website: http://www.dystonia-europe.org
Dystonia Medical Research Foundation
- 1 East Wacker Drive, Suite 2810 East Wacker Drive
- Suite 2810
- Chicago, IL 60601-1905
- United States
- Tel: (312)755-0198
- Fax: (312)803-0138
- Tel: (800)377-3978
- Email: email@example.com
- Website: http://www.dystonia-foundation.org
- 89 Albert Embankment, 2nd Floor
- London, SE1 7TP
- United Kingdom
- Tel: 8454586211
- Fax: 8454586311
- Tel: 8454586322
- Email: firstname.lastname@example.org
- Website: http://www.dystonia.org.uk
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Institute of Neurological Disorders and Stroke
- P.O. Box 5801
- Bethesda, MD 20824
- Tel: (301)496-5751
- Fax: (301)402-2186
- Tel: (800)352-9424
- Website: http://www.ninds.nih.gov/
National Spasmodic Torticollis Association
- 9920 Talbert Avenue
- Fountain Valley, CA 92708
- Tel: (714)378-9837
- Fax: (714)378-9830
- Tel: (800)487-8385
- Email: NSTAmail@aol.com
- Website: http://www.torticollis.org
Spasmodic Torticollis ST/Dystonia, Inc.
- PO Box 28
- Mukwonago, WI 53149
- Tel: (262)560-9534
- Fax: (262)560-9535
- Tel: (888)445-4588
- Email: email@example.com
- Website: http://www.spasmodictorticollis.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 3/21/2016
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