National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Pediatric Cardiomyopathy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- arrhythmogenic right ventricular cardiomyopathy (ARVC)
- asymmetrical septal hypertrophy
- familial congestive cardiomyopathy
- familial dilated cardiomyopathy (FDC)
- hypertrophic obstructive cardiomyopathy (HOCM)
- idiopathic dilated cardiomyopathy
- idiopathic hypertrophic subaortic stenosis
- non-obstructive hypertrophic cardiomyopathy
Pediatric cardiomyopathy is a rare heart condition that affects infants and children. Specifically, cardiomyopathy means disease of the heart muscle (myocardium). Several different types of cardiomyopathy exist and the specific symptoms vary from case to case. In some cases, no symptoms may be present (asymptomatic); in many cases, cardiomyopathy is a progressive condition that may result in an impaired ability of the heart to pump blood; fatigue; heart block; irregular heartbeats (tachycardia); and, potentially, heart failure and sudden cardiac death.
Cardiomyopathy may be termed ischemic or nonischemic. Ischemic cardiomyopathy refers to cases that occur due to a lack of blood flow and oxygen (ischemia) to the heart. Such cases often result from hardening of the arteries (coronary artery disease). Nonischemic cardiomyopathy refers to cases that occur due to structural damage or malfunction of the heart muscle. Nearly all cases of pediatric cardiomyopathy are nonischemic. This report deals with nonischemic pediatric cardiomyopathy.
Cardiomyopathy may also be termed primary or secondary. Primary cardiomyopathy refers to cases where cardiomyopathy occurs by itself or for unknown reasons (idiopathic). Secondary cardiomyopathy refers to cases where the disease occurs secondary to a known cause such as heart muscle inflammation (myocarditis) caused by viral or bacterial infections; exposure to certain toxins such as heavy metals or excessive alcohol use; or certain disorders that affect the heart and/or additional organs systems. According to the Pediatric Cardiomyopathy Registry, approximately 79 percent of pediatric cardiomyopathy cases occur for unknown reasons (idiopathic).
Nonischemic cardiomyopathy may be further divided into four subtypes based upon the specific changes within the heart. These subtypes are: dilated, hypertrophic, restrictive and arrhythmogenic right ventricular dysplasia.
American Heart Association
- 7272 Greenville Avenue
- Dallas, TX 75231
- Tel: (214)784-7212
- Fax: (214)784-1307
- Tel: (800)242-8721
- Email: Review.email@example.com
- Website: http://www.heart.org
Cardiac Arrhythmias Research and Education Foundation, Inc. (C.A.R.E)
- 427 Fulton Street
- P.O. Box 69
- Seymour, WI 54165
- Fax: (920)833-7005
- Tel: (800)404-9500
- Email: firstname.lastname@example.org
- Website: http://www.longqt.org
- Chiltern Court, Unit 10
- Asheridge Rd Ind
- Chesham, HP5 2PX
- United Kingdom
- Tel: 4401494791224
- Fax: 4401494797199
- Tel: 8000181024
- Email: email@example.com
- Website: http://www.cardiomyopathy.org
Children's Cardiomyopathy Foundation
- PO Box 547
- Tenafly, NJ 7670
- Tel: (866)808-2873
- Fax: (201)227-7016
- Email: firstname.lastname@example.org
- Website: http://www.childrenscardiomyopathy.org
Congenital Heart Information Network (C.H.I.N.)
- P.O. Box 3397
- Margate City, NJ 08402-0397
- Tel: (609)823-4507
- Fax: (609)822-1574
- Email: email@example.com
- Website: http://www.tchin.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
Hypertrophic Cardiomyopathy Association
- 328 Green Pond Rd
- P.O. Box 306
- Hibernia, NJ 7842
- Tel: (973)983-7429
- Fax: (973)983-7870
- Tel: (877)329-4262
- Email: firstname.lastname@example.org
- Website: http://www.4hcm.org
Irish Heart Foundation
- 4 Clyde Road
- Dublin, 4
- Tel: 35316685001
- Fax: 35316685896
- Email: email@example.com
- Website: http://www.irishheart.ie
Kids With Heart ~ National Association for Children's Heart Disorders, Inc.
- 1578 Careful Dr.
- Green Bay, WI 54304
- Tel: (920)498-0058
- Fax: (920)498-0058
- Tel: (800)538-5390
- Email: firstname.lastname@example.org
- Website: http://www.kidswithheart.org
Little Hearts, Inc.
- P.O. Box 171
- 110 Court Street, Suite 3A
- Cromwell, CT 6416
- Tel: (860)635-0006
- Fax: (860)635-0006
- Tel: (866)435-4673
- Email: email@example.com
- Website: http://www.littlehearts.org
Montgomery Heart Foundation for Cardiomyopathy
- 1830 E. Monument St./Suite 7300
- Baltimore, MD 21205
- Tel: (402)502-2578
- Fax: (443)287-4109
- Email: firstname.lastname@example.org
- Website: http://www.hopkinsmedicine.org/cardiomyopathy/
NIH/National Heart, Lung and Blood Institute
- P.O. Box 30105
- Bethesda, MD 20892-0105
- Tel: (301)592-8573
- Fax: (301)251-1223
- Email: email@example.com
- Website: http://www.nhlbi.nih.gov/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 12/7/1969
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