National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Rasmussen Encephalitis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- chronic encephalitis and epilepsy
- chronic localized (focal) encephalitis
- epilepsy, hemiplegia and intellectual disabilities
- Rasmussen syndrome (RE)
Rasmussen encephalitis, sometimes referred to as Rasmussen syndrome, is a rare disorder of the central nervous system characterized by chronic inflammation (encephalitis) of one hemisphere of the brain. As a result, the patient experiences frequent episodes of uncontrolled electrical disturbances in the brain that cause epileptic seizures (epilepsy). Further symptoms may include progressive weakness of one side of the body (hemiparesis), language problems (if on the left side of the brain) and intellectual disabilities. The exact cause of this disorder is not known. The two leading ideas are that the brain inflammation might be a reaction of a foreign antigen (infection) or an autoimmune disease limited to one side of the brain resulting in brain damage.
It occurs mostly, but not always, in children between the ages of two and ten years, and in many cases the course of the disease is most severe during the first 8 to 12 months. After the peak inflammatory response is reached, the progression of this disorder appears to slow or stop and the patient is left with permanent neurological deficits.
Centers for Disease Control and Prevention
- 1600 Clifton Road NE
- Atlanta, GA 30333
- Tel: (404)639-3534
- Tel: (800)232-4636
- Email: firstname.lastname@example.org
- Website: http://www.cdc.gov/
- 32 Castlegate
- North Yorkshire, YO17 7DT
- United Kingdom
- Tel: 4401653692583
- Website: http://www.encephalitis.info
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
- P.O. Box 1239
- Aledo, TX 76008
- Tel: (817)307-9880
- Email: email@example.com
- Website: http://www.hemifoundation.intuitwebsites.com/welcome.html
NIH/National Institute of Neurological Disorders and Stroke
- P.O. Box 5801
- Bethesda, MD 20824
- Tel: (301)496-5751
- Fax: (301)402-2186
- Tel: (800)352-9424
- Website: http://www.ninds.nih.gov/
RE Children's Project, LLC
- 79 Christie Hill Road
- Darien, CT 06820
- Tel: 917-971-2977
- Fax: 212-840-1233
- Email: firstname.lastname@example.org
- Website: http://www.rechildrens.org
Rasmussen's Syndrome and Hemispherectomy Support Network
- 8235 Lethbridge Road
- Millersville, MD 21108
- Tel: (410)987-5221
- Email: email@example.com
- 1825 K Street NW, Suite 1200
- Washington, DC 20006
- Tel: (202)534-3700
- Fax: (202)534-3731
- Tel: (800)433-5255
- Email: firstname.lastname@example.org
- Website: http://www.thearc.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 1/6/1970
Copyright 2012 National Organization for Rare Disorders, Inc.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.