National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Hydrocephalus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Hydrocephalus is a condition in which abnormally widened (dilated) cerebral spaces in the brain (ventricles) inhibit the normal flow of cerebrospinal fluid (CSF). The cerebrospinal fluid accumulates in the skull and puts pressure on the brain tissue. An enlarged head in infants and increased cerebrospinal fluid pressure are frequent findings but are not necessary for the diagnosis of Hydrocephalus. There are several different forms of Hydrocephalus: communicating hydrocephalus, non-communicating hydrocephalus or obstructive hydrocephalus, internal hydrocephalus, normal pressure hydrocephalus, and benign hydrocephalus.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
1825 K Street NW, Suite 1200
Washington, DC 20006
National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1653
4340 East West Highway Ste 950
Bethesda, MD 20814
International Federation for Spina Bifida and Hydrocephalus
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
42 Park Road
Peterborough, PE1 2UQ
Hydrocephalus Support Group, Inc.
1933 Mistflower Glen Ct.
Chesterfield, MO 63005-4236
Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Hydrocephalus Foundation, Inc.
910 Rear Broadway
Saugus, MA 01906
Spina Bifida & Hydrocephalus Association of Ontario
P.O. Box 103, Suite 1006
555 Richmond Street West
Toronto, Ontario, M5V 3B1
Spina Bifida Hydrocephalus Queensland
PO Box 8022
Tel: (07) 3844 4600
Fax: (07) 3844 4601
Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy
Kensington, MD 20895
International Hydranencephaly Support Group
11634 203rd Street
Maple Ridge BC, V2X 4T9
Chiari & Syringomyelia Foundation
29 Crest Loop
Melville, NY 11747
Fetal Hope Foundation
9786 South Holland Street
Littleton, CO 80127
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 1/8/2007
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