National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Lichen Sclerosus is not the name you expected.
Lichen sclerosus is a chronic skin disorder that most commonly affects post-menopausal women. However, it is sometimes identified among pre-menopausal women, and, even more rarely, among males. When found in males, the disease is known as balanitis xerotica obliterans.
Lichen sclerosus is characterized by skin changes of the external genitalia (i.e., vulva, head of the penis), although other parts of the body may also be affected. Intense itching often accompanies attacks of lichen sclerosus. The disorder is not contagious nor is it a sexually transmitted disease. In the recent past, a genetic component for lichen sclerosus has been recognized. In addition, many clinical researchers believe that it is a disorder of the immunological system. The understanding of the causes of this disorder is still incomplete. Lichen sclerosus can develop concurrently with other conditions.
American Autoimmune & Related Diseases
- 22100 Gratiot Ave.
- Eastpointe, MI 48021
- Tel: (586)776-3900
- Fax: (586)776-3903
- Tel: (800)598-4668
- Email: email@example.com
- Website: http://www.aarda.org/
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
International Scleroderma Network
- 7455 France Ave So #266
- Edina, MN 55435-4702
- Tel: (952)583-5735
- Tel: (800)564-7099
- Email: firstname.lastname@example.org
- Website: http://www.sclero.org
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse
- One AMS Circle
- Bethesda, MD 20892-3675
- Tel: (301)495-4484
- Fax: (301)718-6366
- Tel: (877)226-4267
- Email: NIAMSinfo@mail.nih.gov
- Website: http://www.niams.nih.gov/
National Vulvodynia Association
- P.O. Box 4491
- Silver Spring,, MD 20914-4491
- Tel: (301)299-0775
- Fax: (301)299-3999
- Email: email@example.com
- Website: http://www.nva.org
National Women's Health Network
- 1413 K Street, NW
- 4th Floor
- Washington, DC 20005
- Tel: (202)682-2640
- Fax: (202)682-2648
- Email: firstname.lastname@example.org
- Website: https://nwhn.org/
National Women's Health Resource Center
- 157 Broad Street,
- Suite 106
- Red Bank, NJ 7701
- Tel: (732)530-3425
- Fax: (732)530-3347
- Tel: (877)986-9472
- Email: email@example.com
- Website: http://www.healthywomen.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/23/2004
Copyright 2004 National Organization for Rare Disorders, Inc.
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