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It is possible that the main title of the report Polymyositis is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Polymyositis is a systemic connective tissue disorder characterized by inflammatory and degenerative changes in the muscles, leading to symmetric weakness and some degree of muscle atrophy. The areas principally affected are the hip, shoulders, arms, pharynx and neck.

Supporting Organizations

American Autoimmune & Related Diseases

22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Website: http://www.aarda.org/

Arthritis Foundation

1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
Tel: (404)872-7100
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Website: http://www.arthritis.org

AutoImmunity Community

Website: https://www.facebook.com/autoimmunityforum

Autoimmune Information Network, Inc.

PO Box 4121
Brick, NJ 8723
Fax: (732)543-7285
Email: autoimmunehelp@aol.com

Cure JM Foundation

826 Lynwood Drive
Encinitas, CA 92024
Tel: (760)487-1079
Fax: (760)230-2243
Email: info@curejm.com
Website: http://www.curejm.org

European Society for Immunodeficiencies

1-3 rue de Chantepoulet
Geneva, CH 1211
Tel: 410229080484
Fax: 41229069140
Email: esid@kenes.com
Website: http://www.esid.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

Muscular Dystrophy Association

3300 East Sunrise Drive
Tucson, AZ 85718-3208
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: mda@mdausa.org
Website: http://www.mda.org/

Myositis Association

1737 King Street
Suite 600
Alexandria, VA 22314
Tel: (703)299-4850
Fax: (703)535-6752
Tel: (800)821-7356
Email: tma@myositis.org
Website: http://www.myositis.org

Myositis Support Group

146 Newtown Road
Southampton, S019 9HR
United Kingdom
Tel: 2380449708
Fax: 2380396402
Email: msg@myositis.org.uk
Website: http://www.myositis.org.uk

Myositis Support Group at the Hospital for Special Surgery

2nd Floor Conference Center, Room A
535 East 70th Street
New York, NY 10021
Tel: (212)774-7623
Fax: (212)774-2333
Email: fischbeins@hss.edu
Website: http://www.hss.edu/MyositisGroup.asp

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  12/24/1969
Copyright  2007 National Organization for Rare Disorders, Inc.