Ichthyosis, Netherton Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Ichthyosis, Netherton Syndrome is not the name you expected.
Netherton syndrome is a rare hereditary disorder characterized by scaling skin, hair anomalies, increased susceptibility to atopic eczema (a skin condition that can result in dry, red and flaky skin), elevated IgE levels, and other related symptoms. Netherton syndrome is inherited as an autosomal recessive trait.
Dysautonomia Youth Network of America, Inc.
- 1301 Greengate Court
- Waldorf, OR 20601
- Tel: (301)705-6995
- Fax: (301)638-3962
- Email: email@example.com
- Website: http://www.dynakids.org
Foundation for Ichthyosis & Related Skin Types
- 2616 N Broad Street
- Colmar, PA 18915
- Tel: (215)997-9400
- Fax: (215)997-9403
- Tel: (800)545-3286
- Email: firstname.lastname@example.org
- Website: http://www.firstskinfoundation.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse
- One AMS Circle
- Bethesda, MD 20892-3675
- Tel: (301)495-4484
- Fax: (301)718-6366
- Tel: (877)226-4267
- Email: NIAMSinfo@mail.nih.gov
- Website: http://www.niams.nih.gov/
National Registry for Ichthyosis and Related Disorders
- University of Washington
- Dermatology Dept. Box 356524
- Seattle, WA 98195-6524
- Tel: (800)595-1265
- Email: email@example.com
- Website: http://www.skinregistry.org/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/11/2008
Copyright 2005 National Organization for Rare Disorders, Inc.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.