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UW Health SMPH
American Family Children's Hospital

SMA Education Day: Clinical Updates for Parents of Children with Spinal Muscular Atrophy

8:30am to 2pm (Continental breakfast and lunch included)

University of Wisconsin School of Medicine and Public Health, Health Sciences Learning Center, 750 Highland Avenue, Room 1309. Parking is available in the UW Hospital and Clinics parking ramp; please bring your ticket with you for validation.


Register to Holly Gillette, Medical Program Assistant. E-mail: Mail: Holly Gillette, Medical Program Assistant Pediatric Pulmonary Center 600 Highland Avenue, K4/938 CSC, Box 9988 Madison, WI 53792. Phone: 608-265-2641. Deadline is July 30, 2010.


Sponsored by the University of Wisconsin Pediatric Pulmonary Center

Topics and presenters

  • Update from FSMA: Presented by Kenneth Hobby, President, FSMA, and Colleen McCarthy O’Toole, Family Support Director
  • FSMA Respiratory Therapy: Helpful Information for Parents and Caregivers, presented by Rhonda Yngsdal-Krenz, RRT, MBA and Justine Ropp, RRT
  • Handling Hospitalizations: What to Expect and Tips for Parents and Caregivers, presented by Rhonda Yngsdal Krenz, RRT, MBA; Craig Becker, LCSW; Katie Poole, Parent of Child with SMA Type I
  • Bracing for Function: Presented by Karen Patterson, PT and Dana Janiak-Couture, OT
  • What Happens When You Call 911: Presented by Stu McVicar, RRT